4. Data and sample sharing
I understand and agree that the sample, genomic data and related health information may be shared and stored to help advance scientific knowledge (in a de-identified format – that is, without personal identifiers such as name and address).
I provide consent to share the sample, genomic data and related health information of the patient for ethically approved research into the same or a related condition, where it remains possible to re-identify the patient. This allows relevant information to be returned to me where appropriate. There may not be a direct benefit to the patient and their family
I have had enough time to consider the information in this consent form and have:
Had the opportunity to discuss genomic testing and its implications with a health professional.
Been given access to information about genomic testing.
Been able to ask questions until I am satisfied with the answers.
Been offered a copy of this consent form.
I provide consent for genomic testing as summarised in this form.